First Time Disclosing Herpes

Disclosing for the first time tonight. Could use a little support!

A real conversation from the Herpes Opportunity community. For over 13 years, the H Opp forums were a safe space where thousands of people shared their most vulnerable moments. The forums have since sunset, but these stories live on. More in First Time Disclosing Herpes
mac_89Community Member

Hi everyone,

This is my first time posting to the site, though I've been closely following so many of your stories for some time. Let me first express how inspired I am by all you brave souls out there. I have been so touched by your strength and your vulnerability; two words I have learned are NOT mutually exclusive. In fact, they are synonymous.

My story in a nutshell. I'm 25 years old and I have had GHSV2 for nearly two years. Though I've had time to process this and extract the silver linings (yes, there are silver linings!), I would be lying if I said the words genital herpes don't still make me flinch. I got it from a young, beautiful surfer dude while I was living in Australia. Though he claimed he did not know he had it, his behaviour suggested otherwise. I remember getting the doctor's call like it was five minutes ago. My eyes wide, my hand covering my mouth, paralyzed, shaking, silenced, stunned. My world flipped upside down in an instant. I know so many of you can share in that painful moment with me. Herpes split me wide open. It percolated down into the furthest reaches of my being and challenged my self-concept and my self-esteem.

Fast forward. Dare I say I am now thankful for this experience? Don't get me wrong, if there was an easy button I could press to change my situation, I wouldn't hesitate. But herpes helped me realize how fragile my perceived self-worth was. And it forced me to look within, really look within, and connect with all kinds of aspects of myself that are separate from my sexual identity. Turns out I have a lot to offer. And in time, I've come to understand that herpes does not diminish that.

Ok. So. I met a guy. He is sensational. We've been hanging out for about a month. I've expressed that I like to wait a while before having sex, but our chemistry is so natural and electric, that the lack of intimacy is beginning to seem odd. I've written him a letter which I plan on giving him tonight when he comes over. I know some of you may discourage me disclosing in writing but I want to make sure my delivery is clear. I will be with him when he reads it so that there is an opportunity for dialogue afterwards.

I figured I would share my letter here. For one, I'd love some feedback but I also thought this might help other people who are in a similar situation.

"Mark,

I want to start this letter off by telling you how much I've enjoyed getting to know you these last weeks. It has been a whirlwind of emotions for me as you've come along and truly surpassed all my expectations. You make me feel so at ease with your kindness, your attentiveness and your constant laughter.

It is out of care for you that I need to share something important with you. Please know the amount of vulnerability I am feeling at this moment is beyond words.

Shortly after I started dating Justin, I found out that he gave me HSV-2, more commonly known as the herpes virus. If your lack of knowledge about herpes is anything close to what mine was when I was diagnosed, you are likely feeling panicked and scared. Most of my beliefs about the virus were saturated in ignorance, shame and widespread stigma. So I understand how you feel and I want to give you as much space as you need to digest this and to get properly informed.

The first thing I want you to know is that you will not automatically contract the virus by being with me. In fact, we can still have a fulfilling sex life, as there are an infinite number of ways to be safe.

I know this information is a lot to take in. I can tell you a lot more and do my best to answer your questions. I have had more than a year to sit with this and it is still an ongoing healing process. It has taken time to feel sexy again and worthy of connection. Now, I can appreciate, in some way, that this has taught me to be more open-minded, more sensitive and more loving towards myself and others.

I can't predict what you will choose to do, but I know at the very least, you will be kind and respectful of the fact that this is a deeply personal struggle for me. My hope is that you are willing to stick around and work around this because I feel we could be destined for greatness, you and I. But if you decide this is too scary for you, I can understand that and I won't be mad. Once upon a time, someone didn't give me the choice to make an informed decision.

In my fear of rejection, I have sometimes considered walking away. But I've realized that the pain of ending this without knowing what could have been is far greater than the pain of you potentially backing out, knowing the whole truth.

So there it is.

The last thing I want to say to you is that opening up to someone about this has been the single most important piece to my healing journey thus far and I am beyond grateful for that. So regardless of the outcome, I want to thank you for surrounding me with this loving space where I felt inspired and brave enough to be honest. I'm not sure you will ever understand how much that has meant to me."

Yikes! OK PEOPLE. I will try and update tomorrow. Fingers crossed so tight.

Ihaveittoo1975Community Member

Very well written letter. I got a feeling, without having a clue who/how this guy is, he won't get to the end of the letter before he tells you that this doesn't matter to him and that he wants to be with you no matter what.

Whether or not a letter is the right way to do it, I think only you yourself will know. I have yet to disclose myself (newly diagnosed) but I think it's a personal choice in how to deliver the disclosure. If you feel this is the best way for YOU to do it, then this is the way YOU will disclose.

Best of luck, and definitely give us an update. I am certain it will have a positive outcome!

WCSDancer2010Community Member

k - I'm a woman and I know all this stuff and I felt overwhelmed only 1/3 of the way through when I hit the stats part!. And men are notorious for not being good at overwhelm :)

So - I'd say simplify it. Put all the statistics in a very simple format

15-20% of people have Genital Herpes

80% of them don't know they have it (so you likely have been with someone with it who doesn't know they have it)

Risk of Female to Male transmission is 5% per year

Condoms reduce this risk by 50%

Antivirals reduce the risk by another 50%

So we can get your risk to about 1% ... I'll have a higher chance of getting pregnant on birth control. ;)

Etc..

OR better yet, print out Adrial's handouts and the Ebook and show him the stats there ... the handout is designed to make is EASY for someone to understand the stats :)

Otherwise, a very well written letter .... and if that is how you need to present it, I think it's great as long as you are there. I understand you wanting to make sure to get all the info out there in a clear way ... but it really is important for him to HEAR you so perhaps you can READ it to him??? That is part of the vulnerability thing ... having him hear how courageous you are being in sharing this with him ;)

And welcome! Glad to have you aboard :)

(((HUGS)))

rainyfeatherCommunity Member

Hope that it works out for you.

mac_89Community Member

Thanks for your feedback @WCSDancer2010. I agree that the stats were overwhelming so thank you for the tip :) I'm also considering your suggestion of reading it to him, though I feel my heart going even at the thought! PS. I've read so many of your responses on here and I think you're incredible at what you do... always so collected, positive, and empowering in your deliveries. I wanted you and Adrial to know this website has been a life saver for me in my moments of desperation.

Ihaveittoo1975, thanks for your encouragement. Sending you positive vibrations along your healing journey :)

WCSDancer2010Community Member

Glad to help - oh and the handouts and ebook are here:

Handouts + disclosure e-book:

[link inactive]

Sil88Community Member

Well written! Dancer is probably right about the simple stats, even if I don't appreciate how simple that makes us guys seem :p

It's a very personal letter so it needs to be written in your own way with your own feelings. I think the truth is that the wording won't really matter all that much - it's about his current feelings and his instant reaction to the overall message, which is 'I have herpes but it's not as bad as it sounds'.

If you do read it out and your heart is pounding, that will be so endearing. It will show your vulnerability and be much less formal. His heart melting will override his brain calculating.

Anyway don't overthink, it messes us all up. Expect nothing and you can't be disappointed. I really wish you the best of luck, it'll be fine.

PositivelyBeautifulCommunity Member

Sending all kinds of positive thoughts your way!! No matter his response, remember that you are worthy of love and the compassion and strength you show tonight is proof of that!

strongergirlCommunity Member

I mightcopy this to use one day, Goodluck!! Positive vibes!

ChinupCommunity Member

Love it! Beautifully written!!! Best of luck! Please update us!!!

forgivenessandpeaceCommunity Member

Beautiful!

Ihaveittoo1975Community Member

Very well written letter. I got a feeling, without having a clue who or how this guy is, he won't get to the end of the letter before he tells you that this doesn't matter to him and that he wants to be with you no matter what.

Whether or not a letter is the right way to do it, I think only you yourself will know. I have yet to disclose myself (newly diagnosed) but I think it's a personal choice in how to deliver the disclosure. If you feel this is the best way for YOU to do it, then this is the way YOU will disclose.

Best of luck, and definitely give us an update. I am certain it will have a positive outcome!

Sil88Community Member

Well written! It's a very personal letter so it needs to be written in your own way with your own feelings. I think the truth is that the wording won't really matter all that much - it's about his current feelings and his instant reaction to the overall message, which is 'I have herpes but it's not as bad as it sounds'.

If you do read it out and your heart is pounding, that will be so endearing. It will show your vulnerability and be much less formal. His heart melting will override his brain calculating.

Anyway don't overthink, it messes us all up. Expect nothing and you can't be disappointed. I really wish you the best of luck, it'll be fine.

WCSDancer2010Community Member

I'd say simplify the stats section. Put it in a very simple format. OR better yet, print out the handouts and show him the stats there -- the handout is designed to make it EASY for someone to understand.

Otherwise, a very well written letter ... and if that is how you need to present it, I think it's great as long as you are there. I understand you wanting to make sure to get all the info out there in a clear way ... but it really is important for him to HEAR you so perhaps you can READ it to him? That is part of the vulnerability thing ... having him hear how courageous you are being in sharing this with him.

And welcome! Glad to have you aboard.

mac_89Community Member

Thanks for your feedback. I agree that the stats were overwhelming so thank you for the tip. I'm also considering the suggestion of reading it to him, though I feel my heart going even at the thought!

mac_89Community Member

Beyond touched by all your support.

I am so happy to share good news. I had him read the letter and his first words to me were "You poor thing. I'm really starting to hate this guy." He laid next to me in bed and wiped every tear, kissed my cheek, expressed how much he cared about me and how strong he thought I was. He said he doesn't want to lose me and wants to be here for me. He also told me that he had a scare once and so he's pretty well-informed about herpes ... understands it is not as big a deal as societal stigma would suggest.

After about an hour of chat, he asked if I wanted to make some dinner and curl up to a movie. He even spent the night and was very sweet and affectionate with me. I kept waking up to little kisses on the back of my neck. Yikes! This one's a keeper.

We've agreed to go to the doctor together so that he has all the information he needs to make a decision he feels comfortable with. Nothing is certain right now, I have no expectations ... it's only been a day. But I woke up feeling lighter today, and more hopeful.

Yes!! There are sensational people out there who won't flinch when you bare all. Herpes is a good way of weeding out the boys from the men.

Sil88Community Member

What a guy, really happy for you.

rainyfeatherCommunity Member

This is really great news to hear, and so happy that he was so understanding about everything. The release of all your pent up feelings must have been like dropping a heavy bag from your shoulder, the kind that makes you feel like you might float away because the burden has been released.

trina722Community Member

I just wanted to let you know that your letter has inspired me to disclose to the guy I am seeing, instead of backing out! That letter is beautifully written. Good luck!

lolo84Community Member

I just want to say that your post is very inspiring and it brought me to tears (good tears). I am going through a similar situation and I need to disclose to the person I am dating. Your letter is very well written and I plan to do something similar because words fail me sometimes when I need them most. This is terrifying but it's something that absolutely needs to be done. Thank you for sharing your experience, it truly gave me some hope.

ChinupCommunity Member

That's absolutely wonderful news!!!!! Very happy for you!!!!! :-)

PositivelyBeautifulCommunity Member

Amazing news!! You deserve a great guy, so enjoy him, enjoy each other! :)

willowCommunity Member

Aww how sweet!!! Glad everything went smoothly!!

WCSDancer2010Community Member

Good for you! See, it's not that hard! And yes, he sounds like a keeper!!!

(((HUGS)))

Ihaveittoo1975Community Member

Very happy for you that it all worked out!

Sil88Community Member

What a guy, really happy for you

mac_89Community Member

@Sil88 PS. I used your advice on swapping out the words "normal and fulfilling"... Who wants to have a normal sex life! I appreciated your feedback and found it really insightful/perceptive. I liked the fact that you were coming at it from a guy's perspective :) cheers friend

trina722Community Member

Hi!

I just wanted to let you know that your letter has inspired me to disclose to the guy I am seeing, instead of backing out!

That letter is beautifully written. I hope everything goes well.

Good luck!

xoxo

CecibuendiaCommunity Member

@mac_89 you are SO BEAUTIFUL i wish u the best... im feeling like u and i dont know i hope to feel the same stronge attitude like u... please tell us everything

lolo84Community Member

Hi, i just want to say that your post is very inspiring and it brought me to tears (good tears). I am going through a similar situation and i need to disclose to the person i am dating. Your letter is very well written and I plan to do something similar because words fail me sometimes when i need them most. This is terrifying but its something that absolutely needs to be done. Thank you for sharing your experience, it truly gave me some hope :)

More conversations in First Time Disclosing Herpes:

More community stories: