Overcoming Herpes Shame & Stigma

What I (21F) have learned post-diagnosis

A real conversation from the Herpes Opportunity community. For over 13 years, the H Opp forums were a safe space where thousands of people shared their most vulnerable moments. The forums have since sunset, but these stories live on. More in Overcoming Herpes Shame & Stigma
ivoryrainCommunity Member

Being diagnosed with H is scary. Being diagnosed with H at 19 is extra scary. I wanted to share what I've learned in my nearly 2 years post-diagnosis. I feel like I'm forgetting a lot since I'm so used to it now, but I'll make a part II if I think of anything else.

1. It is 100% okay to stand up for your sexual health. Prior to H, I never felt comfortable standing my ground when a partner would try to pressure me to not use condoms. Now, the quickest way to be kicked out of my bed is to not respect my choices...the FIRST time.

2. No, you will not be #ForeverAlone. This is not the end of your dating or even casual sex life.

3. No, you will not be rejected instantly. For what it's worth, I've disclosed to ~40 men, and 3 have rejected me. I've had a few other rejections where the guys later came around after thinking about it.

4. Figure out your disclosure style. What works for someone else may not work for you. Personally, I disclose very early (hence the large number of disclosures) and take a very matter-of-fact approach. Not gonna lie, I practiced disclosing to people from Tinder first hahaha.

5. If someone's first question after you tell him/her is, "How did you get it?" that's rude, none of of his/her business (unless you choose to share), and typically (in my experience) a veiled attempt at seeing if you sleep around. It CAN be genuine curiosity, but it's still rude for that to be the FIRST question. Proceed with caution.

6. You don't need to feel embarrassed, ashamed, dirty, etc. You are none of those things. You got a little virus from skin-to-skin contact? No big deal! YOU are NOT herpes. Okay, so you know that, but you feel embarrassed picking up your antivirals? Chances are the pharmacist at the register didn't even look at the script - just checked for your name. Even if s/he did, s/he probably sees antiviral scripts at least several times per shift.

7. H can be a confidence boost! You have to have a lot of guts to disclose. You have to have a list of good qualities to remind yourself of when you start feeling down or if you meet rejection. Standing up for your sexual health is also another boost.

8. Letting go of anger and resentment towards your giver will do wonders.

9. Letting go of anger and resentment towards yourself will do even more wonders.

10. Eventually, you will hardly think of H except during the occasional OB or disclosing to a new partner.

optimistCommunity Member

@ivoryrain Love it! Thank you!

Rop63Community Member

This!! You have nailed it. Nice job.

MMissouriCommunity Member

I agree with the others! :)

lulu19Community Member

LOVE this!!!!

surfsupCommunity Member

Beautiful -- great wisdom.

JustagirlintheworldCommunity Member

Thank you!

IcanOvercomeCommunity Member

Thanks for sharing!!

Very wise!

26y F almost 3months into diagnosis & figuring out the emotional highs and lows.

Overall doing great, but the bad days are a chance to grow!

MakingIT2017Community Member

This is awesome!!

KatididCommunity Member

Exactly!!!

FearLess47Community Member

I just got diagnosed 2 days ago this really comforted me. I'm 23 and mother disclosing one day scares the crap out of me.

Daisy1978Community Member

Thank u for sharing.

Laughsalot81Community Member

YASSSSS! Thank you for that insight - you are 100% on point!

glasgowgirlCommunity Member

Also a 21F in college and hell yes, I agree! 

cryingontheinsideCommunity Member

20F in college, glad im not alone in this @glasgowgirl @ivoryrain @missanonymous

missanonymousCommunity Member

20F in college, glad im not alone in this @glasgowgirl @ivoryrain @missanonymous

@cryingontheinside thanks for tagging me! I needed this!

More conversations in Overcoming Herpes Shame & Stigma:

More community stories: